October 22nd 2009
I seem to be really bad at this blogging stuff. But, anyway for those of you who are following Keira’s progress here’s some encouraging information that we got from her last monthly checkup.
Keira has grown nearly 4″ in the past 2 months for a total of 37″. While this still puts her in the 1oth percentile against healthy kids. However, compared to other CF’ers she’s doing very well (90th percentile).
Finally, let me leave you with this darling photo of her. Keira was the flower girl at her mom’s wedding and this totally candid picture was taken at the reception a couple of weeks ago.
May 29th 2009
It’s always nice to have a security blanket handy and our “little Linus” is never far away from hers. Recently, Keira’s mom was able to afford better health insurance thanks to a decent steady job. However, this was not without issue.
In the process of changing over, the new plan claimed that several items that were covered under the NYS Child Health Plus were not covered under this “better” plan. Of course that’s precisely when Keira came down with pneumonia.
Keira after a beautiful Memorial Day of play - 2009
While Keira’s mom (Paige), frantically juggled the home finances, my wife and I were cautiously assessing what ‘plan b’ would be if things did not get straightened out in a timely manner.
Although things worked out (the insurance company realized their mistake and Keira didn’t need to be hospitalized this time around), I cannot express how much it helped to know that there WAS a backup. Keira’s Fund is that backup and I once again say ‘thank you!’ Piece of mind went a long way to keeping heads level while negotiating the dizzying maze of insurance.
December 10th 2008
The final totals are in, the items have been shipped, and I am thoroughly stunned at the success of this year’s auction.
Let me give a huge “Thank You!” to everyone who contributed; whether that was via bidding, donating items for auction, paypal donation, or sending ‘well-wishes’, prayers, blessings, etc. ALL of these things are needed and we’re exceedingly grateful!
Keira at our family & friends gathering “GingerFest”
12/07/08
This year we raised:
- $1264 - Auction Bids
- $430 - Direct Donations
- $500 - Matching donation to the CF Foundation
- $500 - Match of the “Matching donation” for the CF Foundation
That means, $1694 went into Keira’s medical fund and $1000 was donated to the CF Foundation in honor of Keira. Thank you all SO much!
